Unlocking Value Potential for a Client’s Rare Disease Treatment

A pharmaceutical manufacturer faced challenges in identifying patients early in the treatment journey for a rare disease, aiming to improve its medication uptake. The client was aiming to:

Identify new revenue opportunities by uncovering untreated patient populations
Tackle healthcare access disparities affecting underserved groups
Optimize provider engagement and reimbursement strategies

Key Results

Uncovered High-Value Rare Disease Patient Populations to Drive Treatment Growth

Challenge

The client’s therapy faced lower-than-expected uptake, and the underlying causes were unclear. They approached Norstella to gain deeper insights into identifying new patients and understanding competitive treatment dynamics.

Solution

Norstella partnered with the client to deliver data-driven strategies, leveraging NorstellaLinQ, including claims data and unstructured EHR notes. With NorstellaLinQ, Norstella generated insights around:

Net-new patient identification tied to revenue potential through wholesale acquisition costs and dosing data.
Treatment dynamics and payer policies, revealing patterns like higher pharmacy benefit utilization.
Guidance on improving HCP alignment using unstructured EHR notes and claims data to optimize referral pathways and reimbursement strategies.

Outcome

Norstella’s expertise in translating complex RWD into actionable strategies allowed the client to achieve business growth while advancing equity and patient access. These insights not only aligned with the evolving payer landscape and value-based care trends, but also set a new standard for leveraging real-world data to transform patient outcomes and provider engagement strategies.

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Frequently asked questions

Everything You Need to Know

How can real-world data improve rare disease patient identification?

Real-world data combines claims and unstructured EHR information to identify untreated patient populations earlier in the treatment journey, helping manufacturers improve therapy adoption and commercial planning.

How did NorstellaLinQ help identify new patient opportunities?

NorstellaLinQ analyzed claims data, unstructured EHR notes and dosing information to uncover net-new patient populations with revenue potential and identify opportunities to improve patient access.

How does real-world data support provider engagement?

By combining treatment dynamics, payer policies and referral pathway analysis, Norstella helped optimize HCP alignment and reimbursement strategies, improving provider engagement and patient access.

Why are unstructured EHR notes important in rare disease research?

Unstructured EHR notes provide clinical context that structured claims data alone cannot capture, enabling a deeper understanding of patient journeys, treatment patterns and referral pathways.

What outcomes did the client achieve?

The client gained actionable real-world data insights that supported business growth, improved patient access, strengthened provider engagement and aligned commercialization strategies with evolving payer expectations and value-based care trends.